Moira – living well with dementia
When Moira was 52 her mum’s disability meant that she was unable to continue to support her. She now lives with her Shared Lives Carer in North West England.
When Moira was 52 her mum’s disability meant that she was unable to continue to support her. She now lives with her Shared Lives Carer in North West England.
We have expertise in supporting people with dementia or at risk of developing dementia.
It has been another busy year for the MacIntyre Dementia Project and to celebrate, the team have released the third edition of the Dementia Project newsletter.
Alongside being born with Down’s Syndrome, Karen was diagnosed with Alzheimer’s Disease in 2014. Since Karen’s diagnosis, staff have done their utmost to provide the best possible support for Karen.
This Dementia Action Week, we celebrate Expert by experience, Rosie Joustra, who works with the Health team, and continues to help everyone understand living with a learning disability and dementia better.
This case study tracks the life of Martin, who died aged 67 having spent 14 years in MacIntyre services. Martin developed Alzheimer’s disease 10 years before he died, and lived comparatively well thanks to the continuity of care.
As part of our response to changes in the health of the people we support, we’ve developed a Dementia Pathway that incorporates bespoke, innovative service support to ensure we are providing best practice advice and interventions to meet the needs of our ageing population.
This World Alzheimer’s Month we want to shine a light on the stigma and discrimination people with a learning disability can face when developing and living with dementia.
As Dementia Action Week begins, Health and Families Manager, Nicola Payne takes us through help available to families to support their loved one with dementia
MacIntyre's Best Practice Team Health and Wellbeing Facilitator, Rachel Furniss, has been running book clubs for the people we support. In this blog Rachel explains how ‘The Page Turners’ have been learning about dementia using the Books Beyond Words resources
Join us in celebrating our Health Team at the Dementia Care Awards
This is Alison’s Story. MacIntyre supports Alison. She has Down’s Syndrome and a diagnosis of dementia.
As World Alzheimer's Month comes to an end, we reflect on the resources available to support people with a diagnosis of dementia
In recognition of Dementia Action Week 2024, we're sharing some useful tips and tricks to help families in supporting their loved ones, and the financial and legal aspects that come with it.
In this case study, Angela gives us a firstperson account of her life, detailing her family history, life with her husband, her interests and her healthcare, including her recent diagnosis of dementia.Nicola, who has supported Angela with her diagnosis, reflects on the importance of telling Angela about the diagnosis and the support needed moving…
Sandra and her family felt that Alison wasn’t just a member of their family, but of the MacIntyre family too
Funded by the Department of Health, MacIntyre Dementia Project aims to improve the support and care for people with learning disabilities who have dementia.
MacIntyre set up a Dementia Special Interest Group in 2011 to respond to the challenge posed by the changing needs of an ageing population.
People with a learning disability are living longer, yet they are still dying 20 years younger than the rest of the population. It is well known that people with a learning disability are more likely to live with other health conditions such as diabetes, epilepsy, dementia and dysphasia.
The Dementia Special Interest Group is open to anyone who would benefit from sharing experiences arising from the changing needs of people with dementia.
The Keep Going…….Don’t Stop! (KGDS) group was formed with a focus of creating materials that are easily accessible to people with a learning disability in different formats, predominantly Easy Read.
On Sunday 30 September, over 70 people took part in MacIntyre’s first ever Memories and Miles event.
Recently, we've been exploring how Intensive Interaction can benefit people living with dementia and today's film demonstrates how effective the approach can be.
The end of July saw the first Bedfordshire Memory Café open its doors. Filled with fun, laughter and budding friendship, it was an opportunity for people to share their ideas for future cafés.
On Sunday, October 7 Donald Delmohamed is independently taking on MacIntyre’s one-mile memory walk ‘Memories and Miles’ in his wheelchair.
This case study shares learniing from a Roundtable event which MacIntyre hosted for our staff from Shrewsbury and surrounding areas.
After the success of both the Milton Keynes and Warrington Memory Cafés, we are thrilled to announce that Memory Cafes are now opening in Bedfordshire and Chesterfield
On Sunday 7 October the second of our Memories and Miles events was held at Loughton Lake in Milton Keynes.
This Best Practice Guide will give you support in organising a roundtable event for your staff, from arranging a venue to preparing topics.
The MacIntyre Memory Café offers a fun, welcoming and relaxing environment for people to take part in social activities, make new friends while enjoying a hot drink and cake.
Following the successful launch of the Bedfordshire Memory Café in July, the team were thrilled to receive an equally positive response to the second café in August.
For day four of Dementia Action Week, we are sharing 6 films from the perspective of one of our Registered Managers, Sarah Lancaster.
Following on from World Alzheimer's Month, MacIntyre’s Admiral Nurse in-training, Astrid Ubas, shares her thoughts on learning disability and dementia
You may have heard about the success of our award-winning Dementia Project this year. The team have achieved a lot and are really working hard to achieve the key project aim of helping people with a learning disability to live well with dementia.The team have shared their views on some big topics on various guest blogs and in sector-leading…
This World Alzheimer’s Month Beth Britton describes working with MacIntyre’s Health Team to support services where people are living with dementia.
It has been two years since our award-winning, DoH funded 'MacIntyre Dementia Project' came to a close but our work around dementia is far from over.
Our award-winning Dementia Project is delighted to announce that in October, MacIntyre will be holding the very first Memories & Miles events.
Hosted by leading campaigner on ageing, health and dementia Beth Britton and Dementia Project Manager at MacIntyre, Sarah Ormston; the webinar will discuss learning disabilities and dementia.
On Friday 9 November, the Dementia Project Team held a party to celebrate the end of the MacIntyre Dementia Project.
Last week, MacIntyre released The Easy Read Dementia Statements at the National Dementia Action Alliance Conference 2019.
A year since the MacIntyre Dementia Project came to an end, we are taking a look at our continued work in dementia and learning disability.
In her latest blog post, Learning Disabilities Admiral Nurse Jane Nickels explores the impact music can have on someone with dementia.
Beth Britton writes about the importance of supporting a person’s independence when they are living with dementia.
In Dementia Action Week 2023, we’re focusing on people who have a learning disability and develop dementia, along with resources that can help.
Receiving a timely diagnosis of dementia can and does make a significant difference to someone with a learning disability and dementia.
In her latest blog, our Learning Disabilities Admiral Nurse Jane Nickels explores the links between autism and dementia.
To mark the fourth day of Dementia Action Week, we are shining a spotlight on our Easy Read Dementia Statements.
Join our webinar with Dementia Action Alliance on Tuesday 8 May at 10am about learning disabilities and dementia.
Following our success in reaching the finals of the National Learning Disability and Autism Awards earlier this year, we have now also reached the final in two categories of the Dementia Care Awards.The National Dementia Care Awards is an annual event organised by The Journal of Dementia Care, a multidisciplinary journal for all professional…
With approximately 850,000 people living with dementia in the UK, the resource provides valuable insight into the types of the condition.
Last week, the MacIntyre Dementia Project was fortunate to take part in and present at the Dementia Action Alliance (DAA) Dementia and Learning Disabilities Roundtable.As part of its campaign this year, the DAA is focusing on improving care and support for people affected by dementia who come from seldom heard groups: prisons, LGBT,…
Jane Nickels shares advice for supporting a person living with a learning disability and dementia who is approaching the end of their life.
To mark the second day of Dementia Action Week 2019, we are highlighting a host of resources we have on dementia.
Rosie and Rachel have been working alongside our Dementia Project team since the beginning as Experts by Experience.
Sarah Ormston was featured within the latest Royal College of Psychiatrists MSNAP newsletter, sharing why the time to take action on dementia and learning disability is now.
Content creator, consultant, trainer and mentor Beth Britton joins host Nicola Payne to discuss her personal experience of dementia and share her expertise.
On Thursday 11 February Jane Nickels, MacIntyre's Learning Disability Admiral Nurse, will be presenting at the Brace 'Dementia and Learning Disabilities' online event.
We are excited to announce that MacIntyre is a partner of this year’s UK Dementia Congress, the UK’s largest dementia focused event.Now in its 12th year, the UK Dementia Congress will take place on 7-9 November at Doncaster Racecourse. Organised by the Journal of Dementia Care, each year the event offers a mix of innovative sessions, debates and…
In the latest episode of the MacIntyre Families Podcast, host Nicola Payne is joined by Victoria Lyons. Victoria is a Senior Consultant Admiral Nurse working at Dementia UK.This episode covers:An introduction to Dementia UK?What is young-onset dementia?What are the earliest signs of young-onset dementia?Advice for making a person's home dementia-friendlyLiving…
This booklet presents 5 statements relating to Dementia in Easy Read format.
As our work on the award-winning MacIntyre Dementia Project continues, so does our support from leading dementia freelance campaigner, consultant, writer and blogger Beth Britton, who remains a key part of the project.In Beth’s latest article for the Huffington Post, she explains why dementia services could learn a huge amount from the learning…
Have you received the Journal of Dementia Care May/June issue? Flick to page 20 and you can read an article from our Director of Adult Services, Emma Killick.It is becoming widely recognised that people with a learning disability are at an increased risk of developing dementia. As Emma describes in the article, the MacIntyre Dementia Project is working…
MacIntyre has been approached by University of Stirling to help find participants for this study.
It’s safe to say that MacIntyre is floating on cloud nine at the moment, with not one but TWO more award-wins last week.After an extremely successful few days at UK Dementia Congress, the Dementia Project team were delighted to win the Outstanding Dementia Care Innovation Award at the 2017 Dementia Care Awards. The Project was commended for its people-first…
Dementia Action Alliance (DAA) launched its new campaign ‘From Seldom Heard to Seen and Heard’ last week at the Royal College of Nursing (RCN). The launch was based on the findings of Roundtable events held in June, which discussed three seldom heard groups: people with a learning disability, the LGBT+ community, and prisoners but many other ‘Seldom…
On 23 February, Jan Kendall will be taking on the Looe Ten Miler in the name of MacIntyre.
A chance to visit the theatre and experience a show – It’s not always easy when you have a diagnosis of dementia...
We couldn’t be prouder to share that thanks to your fundraising efforts we have raised over £560.
A visual guide to reducing the risk of developing dementia and decelerating the process if already diagnosed
Over the next few days MacIntyre will be sharing a variety of resources for Dementia Action Week.
Spring has sprung! The clocks have finally moved forward and the daffodils are in full bloom.
Jane Nickels, MacIntyre's Learning Disabilities Admiral Nurse, shares her latest blog post.
This short document helps to facilitate a conversation explaining what it means that someone has dementia.
In partnership with Dementia UK, we are proud to welcome Jane Nickels to join MacIntyre as the UK's first specialist Learning Disability Admiral Nurse.
Jane Nickels, MacIntyre's Learning Disabilities Admiral Nurse, shares her latest blog post with tips on self care for carers.
MacIntyre is committed to continuing our ground-breaking work supporting people who have a learning disability and autistic people who have a diagnosis of dementia
The Wellbeing for Life toolkit, created by MacIntyre’s award-winning Dementia Project team, brings together a range of resources to promote awareness and understanding about getting older with a learning disability and living well with dementia.Following a successful pilot phase with selected geographical areas of MacIntyre, the toolkit was made available…
For many people with dementia, feelings of distress can emerge in the late afternoon and continue into the night, which is often known as 'sundowning'.
In the latest podcast episode, Nicola talks with two guests with expertise in Dementia, and our regular Dementia Special Interest Group meetings
Jane Nickels, MacIntyre's Learning Disabilities Admiral Nurse, shares her latest blog post.
Sarah Ormston, MacIntyre’s Health, Dementia and Wellbeing Manager features in the February edition of the Dementia Action Alliance Newsletter.
Admiral Nurses are specialist dementia nurses who provide amazing support to people with dementia and their families.
Every Friday, our Health, Dementia and Wellbeing Team share free, valuable resources, containing examples of good practice and advice. Have a look at the resources released in January and February 2019.
Following a new partnership between Dementia UK and MacIntyre, a fantastic opportunity has arisen for a registered nurse to join MacIntyre as a 'Learning Disabilities Admiral Nurse'.
Nicola Payne looks back over the MacIntyre Health Team's achievements in 2023 and plans for 2024.
Last week, MacIntyre’s Health and Dementia Team spent the afternoon with the Thames Valley Police, discussing learning disabilities and dementia.
MacIntyre’s Health, Dementia and Wellbeing Manager Sarah Ormston will be attending the National Dementia Action Alliance Conference 2019.
We are delighted to announce that the 'Keep Going....... Don't Stop!' group have been chosen as winners of the Dimensions 'Learning Disability and Autism Leader's List 2019' in the category of 'Work and Education'.
In her first blog post Jane Nickels, MacIntyre’s newly appointed Learning Disabilities Admiral Nurse, shares her experience at MacIntyre so far.
Nicola explores the importance of recording a person’s health on a daily basis, and how it helps us observe small changes.
Memories and Miles returns for 2020 and you're invited to take part in helping the people we support live well with dementia.
In this episode Sui-Ling speaks to Dementia specialist Beth Britton about the work happening across MacIntyre on to support families and people living with someone with Dementia.
We all join MacIntyre for different reasons, and when I started working for the organisation over 10 years ago I wasn't truly sure what MacIntyre was really about, but I was intrigued.
With a total of four miles, nearly 400 walkers, Memories and Miles walks were a great way to celebrate the end of our three-year Department of Health funded Dementia Project.
For the sixth day of Dementia Action Week, we are sharing a story that highlights why continuity of care is essential and the importance of staff and families working together to support a people with dementia.
At MacIntyre, we believe that information should be accessible for all.
Jane Nickels, MacIntyre's Learning Disabilities Admiral Nurse, shares her latest blog post detailing her top tips for promoting good brain health.
Have you or a loved one been affected by dementia? This Saturday, August 17 we are launching Memories and Miles 2019, starting with Memories and Miles in Warrington.
In the latest podcast episode, Beth Britton and Nicola Payne discuss supporting people living with both dementia and a learning disability.
We are thrilled to announce that MacIntyre has been awarded not one, but two awards at the National Learning Disabilities and Autism Awards on Friday.
When you suspect someone with a learning disability has dementia, there can be many obstacles between the initial signs to a full diagnosis.
Involving the people we support is central to everything that we do at MacIntyre, and it has been a clear, shared vision from the very start of our Department of Health funded Dementia Project.
Today is 'Employee Appreciation Day', so we would like to take the opportunity to say thank you to our all of our fantastic staff.
Our Director of Adult Services, Emma Killick, spoke to Anna Melville-James, Writer and Editor of Elder Magazine, about the importance of healthcare organisations and charities working together.
Well on reflection of this month, it’s been enlightening. I have now had the opportunity to leave my home and venture to MacIntyre's Central Office in Milton Keynes. The team there were very welcoming and even decorated my desk, which was a lovely touch. I’ve learnt about MacIntyre’s ‘Resources Library’ and the Great Interaction’s ‘Try Before You Buy’…
We are pleased to share that our Health, Dementia and Wellbeing Team have contributed to the recent Public Health England Publication, 'Preventing falls in people with learning disabilities'.
MacIntyre and Jane Nickels, MacIntyre and Dementia UK's Learning Disabilities Admiral Nurse, are finalists at the Nursing Times Workforce Summit and Awards.
We're wishing our incredible Learning Disabilities Admiral Nurse Jane Nickels and our Health, Dementia and Wellbeing team luck at the Awards tonight.
Our approach and expertise has been recognised across the sector as industry leading. We are extremely proud of our specialists, staff and the people we support.
On Tuesday, August 28 there’s another chance to attend our Milton Keynes Memory Café.
I remember one of my first thoughts when joining was ‘what does Great Interactions look like in practice?’.
At MacIntyre to invest in the continuing professional development of our staff, we provide access to best practice groups known as the ‘MacIntyre Special Interest Groups’.
We are thrilled to share that Memories and Miles will be back for another year.
In the latest episode of the 'MacIntyre Families Podcast' Nicola Payne talks to Jane Nickels, our newly appointed Learning Disabilities Admiral Nurse.
Chris has a diagnosis of dementia which is becoming more prevalent; some days he seemingly does not want to engage in activities and sessions he has previously enjoyed.
Repetition can be a way a person with dementia who is struggling to remember something tries to remember it – repetition may be a style of learning that the person practiced at school.
This is an easy read leaflet produced by the Dementia Project to explain Respect.
The MacIntyre Memory Café in Milton Keynes has become a safe space for families, people we support and people with dementia to meet and share their experiences.
On Monday 19 November, the ‘Keep Going…Don’t Stop!’ group held their annual showcase, to reflect and share all of their achievements throughout the year.
On Saturday, we launched Memories and Miles 2019 in Warrington, kick-starting our set of upcoming Memories and Miles events.
Two events, two miles and a host of fantastic attendees; Memories and Miles in Chesterfield and Milton Keynes were events to remember.
Part of "Changed Behaviour" series
The end of July saw the first Memory Café open its doors in Flackwell Heath, Buckinghamshire, hosted by MacIntyre The Cherries.
MacIntyre holds Memory Cafés in areas around the country. Here's a bit more about them and who they're for.
Last week, it was announced that several of our staff had been shortlisted for the National Learning Disability & Autism Awards.
In Warrington Shared Lives, one of the options we offer to people is day support. This is where the Shared Lives carer uses their own home as a base to support someone but also supports them to get out and about too.
Whilst Valentines Day is traditionally a day filled with candlelit dinners, flowers and romance, at MacIntyre we are reminded daily that love has many forms.
Could you take on ten miles for MacIntyre? On Saturday 23 Febuary, Jan Kendall did just that by running the Looe Ten Miler, to raise over £300 for our growing number of Memory Cafés across the country.
Last month, we sadly said goodbye to Moira, a wonderful lady who was supported for a number of years through our Shared Lives scheme in Warrington.
Physical changes in the person's brain could result in the parts of their brain that should regulate their behaviour deteriorating or no longer functioning.The person may be hallucinating as part of their dementia symptoms - this may be particularly noticeable around evenings and night times. If the person has Lewy Body dementia, this is especially…
Did you know that we regularly share free, valuable resources on our expertise?
With our Memories and Miles events coming up in several locations across the country, we explore what our Memory Cafés can offer...
This Saturday our one-mile fully accessible event, Memories and Miles, will take place in Ellesmere Port and you’re invited.
Part of Changed Behaviour series
A new year, means new Memory Café dates for 2020.
On Friday 29 January we will be taking our much-loved MacIntyre Memory Cafe online for the first time, welcoming people across the country to join us.
Beth Britton, one of three consultants on the Dying to Talk Project, shares why it’s important for MacIntyre services to connect with their local hospice.
One of the ways we hear the voice of people who draw on our support is through the use of Life Stories. Life Story work can be presented in many ways depending on how someone prefers to communicate so each the person is involved in a meaningful way.
Our Health and Wellbeing Facilitator, Rachel Furniss is shifting the mindset to help people feel more comfortable to talk about periods and menopause as part of Wellbeing of Women and Holland & Barrett’s newly launched Women’s Health Community Fund.
The MacIntyre Memory Cafés offer a fun, welcoming and relaxing environment for people to take part in social activities, make new friends and enjoy fantastic cake and cups of tea and coffee.
Competitive pay, free sector-leading training, career progression and our rewards and perks schemes are just some of the benefits we provide.
At MacIntyre, we encourage people we support and their families to be part of their community. This week in Warrington, there are plenty of ways to make new friends and share experiences.
For the third day of National Co-production Week we are sharing a case study about MacIntyre’s Keep Going…Don’t Stop! group.
This week in Warrington, there are plenty of ways to get involved. Not only do we have our Autism Family group, but there’s also a chance to attend our Warrington Memory Café.
From Monday 30 July, MacIntyre’s Health Team will be sharing vital resources to celebrate the launch of the MacIntyre Health Twitter account.
Since joining MacIntyre three months ago, with no experience of the care industry, I knew I had a lot to learn. During my first few weeks, I was asked if I would like to attend the next Keep Going…….Don’t Stop meeting.
Save the date this Friday, it’s the Warrington Memory Café!
On Friday 28 September, MacIntyre’s Chesterfield Memory Café opened its doors for the first time.
We’re excited to share that Jess Hiles, author of ‘Jess the Goth Fairy’, has been announced as a winner of The Learning Disability and Autism Leader’s List 2018.
We’re thrilled to share that the latest issue of The Ring is now available, just in time for the festive season.
To mark the beginning of Mental Health Awareness Week, we are sharing a few lifestyle tips, mental health statistics that may surprise you, as well as ways we support our staff's wellbeing.
An important issue for VODG (Voluntary Organisations Disability Group) and many other organisations within the sector, including MacIntyre, is to work together to reduce heath inequalities for people with a learning disability.
We are happy to offer advice and support when you are looking for a suitable place for your relative
This weekend, friends Sarah and Becca will be taking part in the Bedford Twilight 10K in aid of MacIntyre.
Part of "Changed Behaviour" series
LeDeR report highlighted Sepsis as the sixth top cause of premature death for people with a learning disability.
Part of Changed Behaviour series.
In 2018 the UK celebrated the 70th birthday of the NHS, sadly, last year’s other important 70th birthday went largely unnoticed. 71 years ago saw the introduction of the 1948 National Assistance Act which was the birth of adult social care as we know it, part of its long, rather dramatic, title was “…to make further provision for the welfare of disabled,…
Part of Changed Behaviour series.
We were delighted to hear that Dr David Hewett, co-founder of Intensive Interaction has been appointed OBE in the New Year’s Honours List 2020.
In celebration of Shared Lives Week 2020 Kathryn Yates, Shared Lives Area Manager at MacIntyre shares her thoughts on the importance of Shared Lives.
The conference will focus on the challenges our sector has faced this year and explore how we can continue to deliver exceptional care despite the challenges ahead.
In the latest episode of the MacIntyre Families Podcast, Sarah Ormston shares the benefits of the NHS Anticipatory Care Calendar (Health Calendar).
The funding from The National Lottery Community Fund will help people understand and feel supported talking about death and dying.
What if you felt unwell, but couldn't always describe why, or displayed pain through unusual behaviour that others dismissed?
If you are supporting someone with a learning disability, supporting them to stay hydrated throughout the day is essential for their health and wellbeing.
We're delighted to share that two MacIntyre colleagues have been shortlisted by the National Learning Disability and Autism Awards.
Nottinghamshire based developers have donated £1,000 to MacIntyre’s Derbyshire team which provides support for people with learning disabilities.
Fiona is one of three new people in the MacIntyre team whose role is to make and build relationships in our local areas.
We are pleased to share that the latest episode of our MacIntyre Families podcast is now available, with a focus on The Dying to Talk Project.
If you’re looking for a job in social care, you’ll come across the phrase ‘person-centred’.
It was all smiles as MacIntyre celebrated its first Community Roast dinner.
An inclusive whole community approach was formed by working together and having an equal and reciprocal partnership which is what co-production is all about.
Beth Britton writes about how the team at The Cherries created a life story book for Barry with the support of his family.
When we are starting to support someone new to MacIntyre who has a learning disability and hearing loss, we work with them to communicate well.
Looking at what MacIntyre have been doing in Derbyshire so far in 2023
We are delighted to announce that MacIntyre has gained a new contract to expand the outstanding Shared Lives scheme across Warrington.
In the latest of our Humans of MacIntyre series, we hear from Kate Boyer, Intensive Interaction Mentor, about the twisty road that led her to MacIntyre.
On World Menopause Day, we have some advice on learning disability and menopause.
Our latest Everyone Everywhere story tells how a neighbourhood community grew from the desire Jamie had to help during the early days of the pandemic
To recognise Dying Matters Week 2024, the MacIntyre Health team have created some Makaton signing cards and videos as resources. Rachel Furniss, Health and Wellbeing Facilitator talks to us about how this all came about and their purpose. She said:During the Dying to Talk project we highlighted a few areas in which staff had requested more help and…
Reflecting on ways MacIntyre support staff with mental health challenges.
As part of Grief Awareness Week with the Good Grief Trust, we’ve been nominated for the #ShineALightAwards!
In which Manchester makes melodic music together